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| From Hidradenitis Suppurativa |
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| From Hidradenitis Suppurativa |
The graft could be rolling up due to too much movement in my arm in that direction so I'm going to have to be extra careful .... or more careful than I have been. The nurse said there is a chance that if I get in to the doctor early enough they can unroll it and re stretch it to cover it back up, if that's something my doctor would even do. So I guess we will see how it goes.
On another note... It is hard as heck to find clothes to put on. I mean I can't move my arm so normal T-shirts are out of the question. Tank tops can work if I put it on starting at my feet, but then I have to worry about getting it over my donor site, which sucks too because anything that touches it makes it feel like I have a blow torch on my leg (even while heavily medicated). So I don't have a whole lot of options.... hopefully the donor site heels really quick so all I have to worry about is finding clothes for my top.
Have a good day
I had surgery about 10 years ago on both of my underarms. I have 2 10 inch scars to prove it. I rarely wear tank tops or sundresses because of it. The surgery was quite traumatic, my surgeon decided to stitch up the wounds and within 2 days, I came very close to having sepsis. It was quite traumatic, and I dont wish this disease on my worst enemy. I am glad to see that you have taken it upon yourself to courageously share your story and spread the word about this f*cked up disorder.
ReplyDeleteThank you for your support Catherine! I am so sorry to here what happened to you! That sounds awful. As you know if you read all of my blog my first surgery was screwed up, and it still has an infection in it. I wear tank tops but I try not to lift my arms if I am out in public just because they are more comfortable. I hope everything stays good with you!
ReplyDeleteOmg Tracey. I have had this ongoing since I was pregnant with my son and he is now 2. I dont have it in my arms, but I have it all threw my thighs and that area down there~ And it has spread to my breasts now. They wanted to remove the one on my breast but I refused as I know what the scarring looks like down there. I'm 26 and feel very old because of this disease. One day I feel good the next I'm in so much pain from this. And yet funny but dr's seem to think nothing is wrong with me. The only one who has been on my side is my surgen. I honestly have no idea what to do anymore about this. I had asked about the skin graffing but they told me it is to wide spread to do it and then the possibility of severe infection wouldnt be worth it. I was almost going to suggest maybe something along the lines of hormone treatment since it was offset by being pregnant. I also have some pretty bad pics of my surgeries. One was a full marsupilization(sp) took a long time to heal. I tip my hat to you for blogging as I hate this disease so much I dont think I even like to write about it. No one understands me when it comes to this and the pain I am in.
ReplyDeleteHI, I got you link from MDjunction and I have to say,
ReplyDeleteWOW, the skin graft seems to be healing quite well. I can't believe you were able to get pics so soon. When I had my surgery last November, I had to keep all bandages on for 7 days. I also had a bolster tied to me to keep the new skin from moving. I was also only in the hospital for 1/2 a day. My surgery lasted almost 6 hours but they did both of my inner thighs. Almost one of my entire legs was shaved. That part does seem to hurt the most during the first few weeks. They let me go home because my mother is an ER RN and they knew she took off work to care for me. They did 2 areas of about 9" x 5" x 1" deep. Ugh, it was awful but I'd do it again.
Anyways, this is your blog and I hope it continues to go well. If you have any questions about what to look forward to, please do not hesitate to ask. I can also show you a pic of what my donor site and my skin graft look like now, 6 months later. :) Good luck finding clothes for the next few weeks. It's a pain in the butt!!! LOL
elizabeth
lizabeth79@yahoo.com
@sheena poldoski I am so sorry for the pain you are in! I know it's awful. I get one every now and then on my thighs and down there (have those wonderful purple scars to prove it...ugg) but it's not bad and generally goes away in a few days. How wide spread is it? And was it a plastic surgeon? If it was go see a different one. If not that's who you need to go see. General surgeons shouldn't even be doing skin grafts. There is always a chance of infection with a skin graft no matter what size, but people get skin grafts all the time that might cover their whole leg... I don't think you should be denied possible relief because of that. And if your General practitioner doesn't believe there is anything wrong with you... either print out the information on it and give it to him or switch doctors.. that's what I did and I am so happy I did. Hormone therapy may work for you, I would try it before you pursue surgery. But before you go drastic with the hormone therapy, the birth control YAZ has worked for some people with HS. The progestin in it blocks the male sex hormone that may play a role in HS. So you could ask your doctor to put you on that. Sorry this was so long, I just really want to help you out. I used to hate talking about HS too, but I realized that if I took all the energy I was putting into being angry/upset/depressed into trying to help people... I felt better about it. If you have any questions or you need to talk you can feel free to ask. I hope you feel better! Thank you!
ReplyDeleteTracy
Tracy and everyone else it's very strange how I came across this it was a photo and I clicked on the link not even looking for anything like this I'm in too much pain to share my story right now I see there hasn't been any activity since 2010 please email me if there still is at snowgoer68@gmail.com
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