This blog is about a rare disease that a lot of people can not find information about or experiences that people have had with it. It is a very hard thing to live with it can be embarrassing and something that you don't want to share with others. I am no longer embarrassed by it. I just want to use my experience to help educate others on the types of surgery, the outcomes, pictures, and what to expect.
Please check back for replies to your comments! Or email me at TracyL.Payne4@gmail.com
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